Clinical Research Study Coordinator (Remote)

The National Organization for Rare Disorders is looking to hire a Clinical Research Study Coordinator. This is a fully remote position.

The job description notes that the employee, “… is responsible for the daily coordination, development and implementation of rare disease patient registries in accordance with study protocols, Good Clinical Practice, and applicable regulatory requirements. The Clinical Research Study Coordinator plays a key role in supporting Registry sponsors and research staff launch and engage participants through registry development and data collection.”

Desired Education/Experience

• Bachelor’s degree in science, research, health or a related field required. Advanced degree preferred.

• At least 3 -5 years of clinical research experience working with human subjects is required (coordinating trials, working in a research clinic or academic medical center).

• Excellent organizational skills and project management skills required.

• Experience working with rare disease families preferred.

• Experience managing multi-stakeholder projects in a research, healthcare technology or academic research environment is required.

For more information or to apply, please click here.